Seppii was granted a 'wish' last year by a company called Willow. Its a charity that grants wishes for young cancer patients who have finished their cancer treatment. Seppii's wish was to go to Orlando, Florida with her boyfriend Ryan, Disney land was the destination. Her wish was granted but she was told that it can take up to 12 months because there was a long waiting list. Sadly after getting the news that Seppii's cancer is now terminal, I had to contact the Willow charity and tell them that Seppii would be unable to go. They were very sympathetic and asked if it would be possible for Seppii to do something nearer to home. After a lot of thought Seppii said she would like to go to London and go on the London eye. The trip was arranged and should have taken place this Sunday (29th July 2018).

All the arrangements were made and we were set to leave on Sunday morning on the 10.30am train from Manchester. The two hour train ride to London was to be followed by a black cab trip to the hotel. The rest of the day was to be ours to do whatever we wanted. The London eye was booked for Monday at 2pm and we were due to travel back to the Christie on the Tuesday.

On Saturday a routine doctors round was to leave Seppii in tears. They had been told of the London trip and came to tell her that it would not be possible. Seppii's health had deteriorated again :( her platelets had dropped to 9, for you and I they are approximately 500! Platelets, also called thrombocytes, are tiny fragments of cells that are essential for normal blood clotting. Her platelets had been this low every day this week and she was being given a bag a day. Her body is trying so had to repair itself that it is using them up at an alarming rate. The consultant told us that they just couldn't risk Seppii being away from the hospital for 3 days, she needs the platelets daily.

So we have sadly had to cancel the London trip :(



 

So this weekend we held Seppii's 'Farwell Party' at Haigh Hall in Wigan. A beautiful venue for my beautiful girl. Nearly 200 people were invited including family, friends and work colleges. I couldn't help but see how disappointed Seppii was to receive messages from friends who were too busy and couldn't make it for one reason or another. My heart really went out to her, I mean what could be more important that saying goodbye to this wonderful person? All I have to say to those who didn't come is  "Shame on you" and "its your loss!".

The party was amazing with everything from releasing beautiful white doves to an Arianda Grande singer. Haigh Hall is a stunning venue with even more stunning views as you can see for yourself from some of the photos below. The party theme was fancy dress and no one disappointed us with everyone turning out dressed up. There was a chocolate fountain, candy floss maker, popcorn machine and endless sweets and cakes. We had three beautiful cakes, two of which were donated and made specially for Seppii, in pink of course! Fresh ice cream made from fresh fruit was being made outside for the guests as they arrived and the buffet was just amazing!

Seppii has been confined to her room for the last few days as she spiked a temperature and her infection markers are up. She has been having anti-biotics and paracetamol intravenously as well as having her oxycodone increased.

This morning it was very hard to wake Seppii and try as I might she stayed fast asleep in her bed. A half hour or so later a nurse came to tell me that there had been an incident with her syringe driver and she had accidentally been given 24 hours of Oxycodone (twice the strength of morphine) in 16 hours. The doctor was called and came to check Seppi every hour but its taken her almost all day to come round.

The machine has been sent off to find out if its faulty and an incident report has been filed but we won't know if it was human error or not until we get the report back.

Seppii was given 3 bags of platelets to get her count up so that she could have her intrathecal this afternoon (Tuesday). Its a terribly painful procedure were fluid is drained from the spine and then chemotherapy is injected in. Seppii was given Entonox to help her cope with the pain.

An hour after having the intrathecal Seppi was putting on her makeup and getting ready to go bowling with all her family :) she really is an amazing girl.

Here are a selection of photos of my beautiful Seppii on some of her good days